So, if you haven't seen it, the blog got a make-over!
Hope you like the new format with the added resources! I welcome your feedback as I try to convert this into both a regular old blog and a resource.
As it turns out, people are reading this thing! And more than one patient has contacted me and told me they found it when newly diagnosed and searching for answers. That makes every word, edit, and moment of questioning if I want to put some of this stuff out there worth it.
And... eventually, I'll get a new post up here. In the meantime, explore some of the resources. The PHA has been busy, and I borrowed from their hard work. :)