The Pulmonary Hypertension Research and Diagnosis Act
The PHA makes it easy to contact senators and representatives to inform them about PH and to encourage co-sponsorship of our current bill - the Pulmonary Hypertension Research and Diagnosis Act.
I have traveled to Washington DC twice to advocate in person. But you don't have to make it to the capitol to get this done. Use the link HERE and see how you can get involved.
A video I sent to the South Korean PH Conference
Sometimes It's PH
In 2012 the Pulmonary Hypertension Association launched a critical new campaign focused on early diagnosis. Based on research from the Reveal Registry, we have learned that in the last 10 years the time from symptom onset to diagnosis has not changed at all. By the time patients are finally diagnosed and recieve care, a full 3/4 of them may be in late stages of the disease.
This is unacceptable. And lives are being lost because of it.
Please visit www.sometimesitsph.org to learn more, and share this information with your doctors, friends, and family.
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